The January 23 Wisconsin Chapter meeting has been Cancelled. 

We apologize for the last minute changes. The Chapter is looking to reschedule the meeting. Please watch for an updated announcement.

SOCRA Wisconsin Chapter


Rare Disease Research


SPEAKER: Robert Haws, MD Pediatrics-Nephrology Physician/Clinical Research Director and founder of the Bardet-Beidl Syndrome (BBS) Program at Marshfield Clinic



1)    Describe the unique features to FDA oversight of rare disease clinical research.

2)    Explain the definition of rare diseases in clinical care and recognize features of rare diseases that impact clinical trials.

3)    Understand the role of rare disease registries and therapeutic drug trials in rare diseases.


DATE:  Tuesday, January 23, 2018


TIME:  5:15 pm - 7:00 pm (presentation to start at 5:30)


LOCATION:  You can attend at one of the following locations:

  1. St. Vincents (Amy Koffanus) rotates with Annette Paul, Jan DeBartolo (Green
  2. Bay), HSHS (Hospital Sisters Health System, Green Bay), Bellin (Green Bay) (Mary Sallenbach), Aurora (Ruth Moroz and Annette Paul)
  3. U of Iowa (Amanda Vyn)
  4. MCW (Becca Selle) Milwaukee (MCW) (Alex Hinman as backup), MCW, BCW
  5. (Blood Organ Tissue Services), CHW (Childrens Hospital of Wisconsin)
  6. Gundersen (Nancy Fisher)
  7. Marshfield, Marshfield Clinic - Large Video Conference Room
  8. Michelle Saunders, Madison, Covance
  9. Mala Bobade, Waukesha Heart Institute
  10. Diana Rosik, Spaulding Clinic West Bend, WI
  11. Heidi Walaski, University of Wisconsin Madison
  12. Appleton Thedacare, jennifer.zimmeryoung@thedacare.org (Not a Site Liaison but willing to coordinate meetings)

** Videoconferencing/webcast will be offered for this meeting.  If you are a SOCRA member and are interested in becoming a remote site for more than 2 people, please send an email to wisocra@hotmail.com for more information.


COST:  Free


CE: 1.5 CE will be offered to SOCRA Members



Daphne York, CCRP (715) 221-7281

Lisa Larson, CCRP   (715) 389-5738


Please share this announcement with your colleagues.